Catalog Search Results
23) Saving Sarah
Author
Pub. Date
[2018]
Description
"When her daughter desperately needed a lung transplant to survive, Janet Murnaghan rallied against the outdated restrictions in healthcare that would limit her daughter's options. Sarah had been dying of cystic fibrosis since the day she was born. The disease quickly ravaged her lungs and little body bit-by-bit. Fragile and frail, she had only weeks to live, when her mom realized the reality of Sarah's situation: transplant laws, restricting access...
Author
Pub. Date
[2021]
Description
""Congratulations on the resurrection of your life," a colleague wrote to Emily Rapp Black when she announced the birth of her second child. The line made Emily pause. Her first child, a boy named Ronan, had died before he turned three years old from Tay-Sachs disease, an experience she wrote about in her first book, The Still Point of the Turning World. Since that time her life had changed utterly: She had left the marriage that fractured under the...
25) Dragonfly
Pub. Date
2002.
Description
Joe, is a physician mourning the death of his wife Emily who died in South America, where she was providing medical outreach. Wracked by grief, Joe feels obligated to check in on his wife's pediatric patients, fulfilling a promise he made before she left. Visiting the ward, Joe starts to believe that Emily is using the near-death experiences of her terminal patients to communicate with him, through images the children report seeing in their dreams,...
Author
Formats
Description
"Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education. But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal...
Author
Series
Pub. Date
[1995]
Accelerated Reader
IL: UG - BL: 4.4 - AR Pts: 5
Description
It's been a year since Katie, Chelsea, and Lacey spent a special summer at Jenny House. This time as Big Sisters to a new group of girls who are also facing life-threatening illnesses. When tragedy strikes Jenny House, the three best friends know that things can never be the same again.
31) Lorenzo's oil
Pub. Date
[2004]
Description
A boy develops a disease so rare that nobody is working on a cure, so his father decides to learn about it and tackle the problem himself.
Series
Pub. Date
c2010
Description
Vanessa Marks returns to her hometown library to read to children the book that she wrote, "November Christmas." The book is about her serious illness as a child and how her family and community teamed up to move Halloween to August and Christmas to November to help her.
33) Ondine
Pub. Date
2010
Description
Tells the story of Syracuse, a simple fisherman who catches a beautiful and mysterious woman in his trawler nets. The woman seems to be dead, but then she comes alive before Syracuse's eyes and he thinks he may be seeing things. However, with the help of his ailing yet irrepressible daughter, Annie, he comes to believe that the fantastical might be possible and that the woman (Ondine) might be a myth come true.